My husband Andy Robert was diagnosed with MDS (myelodysplastic syndrome), a bone marrow disorder, in March 2011. This is about, what promises to be, a very long journey with a life threatening disease. How it effects him physically, emotionally and how it effects his family.
Friday, July 8, 2011
Day three
Today was not as routine as we first thought it was going to be. I arrived at the hospital at the usual time; a little late because it was raining buckets from the time I left home till just outside of Boston. I brought Andy more clothes (pj's and what not). They are more comfy than the johnny with bottoms that the hospital provides..oh I also brought his slippers. Anyway, shortly after I'd gotten there he was getting his first dose of chemo and he also got the anti nausea meds. I spent a little time with him and then I went down to the cafeteria for lunch. As I was munching on my salad Andy emails me on my cell that he pulled out one of his Hickman catheters a little bit. He'd been moving in his bed to get comfortable and inadvertently pulled on the catheter, tearing the stitch that was holding it in place and in turn pulling on his skin very painfully..part of the catheter was pulled out too, making the whole area kinda bleeding a little bit. I quickly finished my lunch and went back up there. In the meantime the doctor had been summoned and he in turn paged the PA for the surgeon who put in the catheters. She showed up about an hour or so after I got back up there, in the meantime, Andy was in a bit of pain. Finally the PA gets there and says she needs to consult with the surgeon on what they need to do. Surgery to take out and replace the catheter or try to re stitch the catheter in place again. The re stitch was decided on. So, she came in and did her thing. She numbed up the area around the catheter but was concerned she'd pierce it so there was space where the numbing med didn't reach. So, it was pretty painful for Andy. After she was done that whole area was pretty sore/feeling like it was burning. He was given pain meds for that so after another hour he was finally starting to feel comfortable again. While the PA was doing her thing, Andy's nurse hooked him up to the second dose of chemo for the day. He was also given his various meds. He started to feel pretty sleepy. By that time, it was time for me to go home anyway. Tomorrow I am going over later because I am bringing my mother and the kids with me. We will be going after lunch and then for a couple of hours instead of like 6 hours. Ben won't go in his room because he doesn't understand about masks and gloves so we'll have Andy come out into the nurses area with his mask and gloves on. Then the girls will take turns with Ben in the waiting room while the other visits with Andy in his room. Hopefully he's feeling good tomorrow. Take one day at a time. :)
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