My husband Andy Robert was diagnosed with MDS (myelodysplastic syndrome), a bone marrow disorder, in March 2011. This is about, what promises to be, a very long journey with a life threatening disease. How it effects him physically, emotionally and how it effects his family.
Saturday, July 9, 2011
Day four
Today was the day that the effects of the chemo are showing up. I don't know why, I guess I was getting comfortable with how he was feeling the past couple of days and was kinda surprised that he was feeling so poorly. But, it's to be expected. Even with the meds, he's not feeling well at all and with that the appetite has left him. He had to force himself to eat half a grilled cheese and a cup of tomato soup. I brought the kids with me today. We brought Ben along with the girls into the nurses area of the floor; Andy was in a mask and gloves so that he could see Ben in particular. Ben is just too young to understand the need for a mask and gloves and then keep them on. So, he had a few words and some hugs for Daddy and then it was off to the waiting room with Lauren. Jenny came into Andy's room with me; showed her the procedure...squirting some Purell on the hands, putting the gloves on and then putting the mask on and then you can go into the room. She stayed for about 15 minutes and then she left and Lauren came over to visit with her dad. She stayed for about 15 minutes and then I stayed with Andy for another 20 minutes or so. He was in the middle of his chemo treatments while we were there and was feeling cold in a warm room. Cute thing is he has a star wars robe...with a hood..lol..anyway..he had to put that on, that's how chilled he was. I was rubbing his hands to help warm them up. After we left he took a nap and now, through chat, it seems like he's feeling better stomach wise, but the ativan is having him feeling a little fuzzy brained. I'm going to see him tomorrow by myself but leaving later like today..after noon...but staying longer. It allows the kids to sleep later and gives my mother and the girls a little break from taking care of Ben. That's all for now. :)
Subscribe to:
Post Comments (Atom)
Sorry to hear that Andy is feeling so poorly and I only hope that he keeps his strength up to get through the treatments. All the support you are giving him must be a big factor in that. All our love from England, Erin and family xxxx
ReplyDeleteThank you Erin. It's real hard to keep up the strength when all he wants to do is sleep, but he manages to get up and go around the nurses station and just getting up and visiting the rest room is better than just laying there. He's trying real hard to keep his spirits up. Hopefully, once he has his stem cell transplant in a couple of days he'll start to feel better. Once those blood counts go up, he'll start to feel stronger and then they'll let him go home which is pretty much all he wants right now. But, one day at a time is our new mantra. That's all we can do, is take one day at a time for now. :)
ReplyDelete